Journaling the Alzheimer's Experience

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Stories

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Sandy:  My two sisters and I used to sit and talk about mom and her care. We would always look at one another and sadly comment, "There will never come a day when we can look back on this and laugh." Nothing about losing a parent to Alzheimer's is funny, not even years down the road.

Today, ten years after mom passed away, we still have no jokes about Alzheimers and scold those who might make them. Only someone who has never dealt with dementia
  would find anything funny in it.

Even so, there are times when we giggle over some things that happened. Toward the last months of mom's life, my sister's husband was carrying her to bed, for she was too weak to walk and the wheelchair was near
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Sandy Part 2: I watched my mom disappear, even though she lived. One day we were sitting, chatting, and she asked me, "when did we first meet?"

I said, "Mom, I'm your daughter, we met in the hospital." She replied, "I know you're my daughter, but when did we first meet?"  She was constantly afraid people were looking in the windows, hiding in the house, etc. I used to argue with her that it wasn't so, but she only got upset with me. Thanks to many books, I learned not to try to set her straight, but to change the subject.
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Ali: My Grandma has Alzheimer's. My Grandpa took care of her for the longest time. It really gets hard. She finally had to go to a home when she ran away, while he was in the shower. She took off with one of her slippers one one foot and one of his shoes on the other foot. He tried going after her and couldn't find his other shoe.

Someone that couldn't speak English found her on the ground. She had a broken hand.
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